stuttering blog
Jul
20th
2011

In a gathering of stutterers, echoes and tribute to Catherine Montgomery

By Eric Corpus, 10:17 am

AIS alumnus Aman Kumar shares his experience at the recent NSA conference:

My experience at the National Stuttering Association conference was singularly transformative, and for stutterers and fluent speakers alike who may have opportunity to attend in future I would simply say: Go. Go for the experience of meeting over a thousand people who speak differently than the rest of society — and differently than each other. Go for the exposure to a diverse set of complex research tackling an equally diverse and complex disorder. Go for the emotion of a group of people being told that they are not alone. Go watch mothers apologize to their children for previously demanding they hurry up, and then watch as the children turn around and forgive their parents. Go for the catharsis and the bravery of it all.

For any human being — fluent, dysfluent, and in between — these are enormously powerful and lasting memories.

Much of my own time at the conference, while not struck by its sheer intensity, was spent in thoughts wandering to the late and beloved Catherine Montgomery, founder of the American Institute of Stuttering. At first blush this may seem coincidental; however, there are three uncommon similarities between the NSA and AIS.

1) Both organizations reflect the ultimate in human compassion. The NSA and AIS are groups of dedicated people uniquely driven towards liberating others from the jail of their own voices and their own psychologies. Their respective ecosystems of researchers, therapists, adults and teens are almost universally empathic and considerate. The two organizations are completely and unilaterally focused on helping their constituents and the wider stuttering community — and in doing so engendering a privileged and special kind of compassion for the rest of humanity.

2) Both organizations offer transformative and transcendent experiences. For those who have attended both an AIS intensive session and an NSA conference, one’s first experience of “conducting stuttering surveys in a park” is not very different to “delivering an open microphone at a workshop.” One neither forgets one’s original AIS intensive nor one’s first NSA conference. The skills of self-awareness, courage, and vulnerability required to draw the most out of each experience are common to both.

3) Both groups inspire passionate and dedicated memberships. Catherine herself encouraged me to attend a conference; she beamed with pride as AIS veteran Sam Gennuso announced some years ago that she was going to present at NSA. Among AIS regulars there is a vibrant and enthusiastic cohort that regularly attends the annual NSA gathering. And during the NSA conference itself there is an equally-vibrant contingent of Catherine’s Fan Club. Even for those who have never had the privilege of meeting Catherine herself, this is a clear and present reminder that her memory and her vision — manifest in AIS itself — continues to thrive.

Amidst the raw joy and celebration of the conference — one thousand stutterers out of 60 million, all helping each other find a voice — and the exuberance and accolades due The King’s Speech, one element has always remained personally deeply bittersweet.

In some ways, it felt cosmically wrong and unfair that Catherine Montgomery never lived to see the fruits of her labor. She was never able to watch The King’s Speech, its resultant burst of media attention directed at stutterers worldwide, nor the plethora of stutterers everywhere coming out of hiding. It was an injustice at the highest levels.

Yet the NSA conference somehow eased that. For the religious, I would like to believe that she was here, somehow understanding and smiling as screenwriter David Seidler congratulated stutterers worldwide. I want to believe that, in those brief days of the conference, she was exulting in the happiness and sense of belonging of stutterers everywhere — the happiness and belonging that she herself had played such an integral part in creating.

Aman writes for Psychology Today on his blog Words Fail Me.

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Jul
17th
2011

On the 2011 Annual Conference for the National Stuttering Association

By Eric Corpus, 10:25 pm

Caryn Herring, a speech-language pathology graduate student and AIS intern, wrote this summary of the recent NSA conference:

I recently attended the National Stuttering Association’s (NSA) annual conference.  This year the conference was held in Fort Worth, Texas and it was considered the largest gathering of people who stutter in history.  There were over 800 people that attended the conference, including people who stutter, parents of children who stutter, siblings of people who stutter, and speech-language pathologists.  Being both a person who stutters and a speech-language pathology graduate student, attending the NSA conference was both educational and therapeutic.  The NSA offers workshops that address a variety of things, including research findings, therapy approaches, parent workshops, and activities themed for children.  Workshops that I found particularly interesting addressed: the effectiveness of different types of stuttering therapy, how medications impact a person’s fluency, genetic causes of stuttering, and brain imaging studies to show neural differences between people who stutter and people who do not stutter.

While I enjoyed the workshops at the NSA conference, I benefited most from being surrounded by people who stutter.  Walking through the hotel and overhearing countless conversations, all of which are stuttered, was comforting.  Knowing that everyone in the hotel either stutters or is extremely accepting of stuttering was a unique experience.  For one week, if you aren’t stuttering, you are considered weird.  The NSA conference shows people who stutter that they are not alone.  Other people are struggling with similar situations and can relate to both daily frustrations and successes.  After a short conversation with someone at the conference, you feel as if you have known him or her all your life.  Even if you come from different backgrounds, have different interests, and different jobs, you share an underlying similarity.  You both stutter.  This one connection makes you able to relate on such a high level and become instantly empathetic.

While in everyday life initiating a conversation with a stranger and stating your name may cause anxiety, at the NSA conference people who stutter have the opportunity to be the outgoing person they want to be.  People at the conference are patient, understanding, and accepting.  You can block on your name for thirty minutes and no one will flinch.  This feeling of unconditional acceptance is priceless and a sensation that every person who stutters deserves to experience.

photo: National Stuttering Association 2011 conference video

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Jun
29th
2011

Haikus about stuttering!!!!

By Carl Herder, 12:14 pm

Last night, after our weekly support/practice group, I joined the group at a local watering hole. During that time, I challenged them to write poetry about stuttering, in the form of a Haiku. Here’s what some of them came up with. What do you think?

By Roelof

Stutterers allowed

To be speaking here tonight

Those who don’t, please fake

Stutterer’s voices

Are like caged birds to be freed

Soaring in the skies

___________________________________

By Caryn

Stu-stu-stu-stu-stu-

stu-stu-stu-stu-stu-stu-stu-

stu-stu-stuttering!

___________________________________

By Marc

Flowing through the words

Not something that comes easy

Story of my life…

Stand up and speak out

Your voice is one to be heard

Make the soul fearless.

___________________________________

Photo: Mattox

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Jun
27th
2011

Stuttering and Relationships: Nicole and Tadeo

By Carl Herder, 8:00 am

Nicole attended the American Institute for Stuttering intensive therapy program in January 2011. She and her boyfriend Tadeo discuss her covert stuttering, the way it has affected her personally, and the impact stuttering has had on their relationship.

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Jun
23rd
2011

Clare and her boyfriend Brett discuss stuttering

By Carl Herder, 5:02 pm

Clare traveled from California to attend the January 2011 intensive therapy program at the American Institute for Stuttering. Her boyfriend Brett visited her here in New York for the last week of the program. In this video, they discuss stuttering and the role it has played in their relationship.

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